Lead the international patient affairs vision and strategy across Europe and regions outside the US, aligning patient priorities with corporate objectives in rare diseases
Develop and cultivate partnerships with patient groups, policy organizations, professional societies, advocacy leaders, and other external stakeholders to drive international impact
Launched the first international multilingual disease awareness patient portal, expanding patient engagement and education infrastructure globally
Delivered a study, the largest international and first European survey, helping advance disease recognition and support market access in key European markets
Expanded global patient education and outreach through partnerships with medical communications firms, advocacy groups, and key opinion leaders, reaching more than 130,000 people worldwide
Generated insights that informed R&D programs and embedded patient perspective into patient-oriented initiatives